I am sharing this message from Athos and Helen, parents of sweet Stephen who passed away a couple of weeks ago. Dave, Carmen and I had the privilege of attending Stephen’s funeral.

It saddens us all to know that our son Stephen Andres Brewer entered into heaven in the early morning of Sunday, August 2, 2009. Stephen, as all of our children affected by GM-1 and other Lysosomal Storage diseases do, fought a bold and brave battle against incomprehensible odds for three years.

Stephen was a little boy with the courage and strength beyond measure.  He confronted the unrelenting symptoms of this disease and never let it affect his beautiful spirit.  Stephen was surrounded by his family as he left this earth.  Simultaneously as his spirit lifted to heaven, it began to pour rain as though the angels and God cried tears of joy to have him back home. We will miss him dearly.

Athos and Helen Brewer

Stephen, February 2008. Isn’t he adorable?!