With much sadness, I share with you that another Tay Sachs child has passed away. Bryan, a beautiful 6 year old boy, passed away May 18th. He is in Heaven now with his older brother, Brandon, who died in 2005 at 5 years old from Tay Sachs. We ask for prayers for our friends, Mario and Marlin who have endured more than we can imagine. Mario and Marlin are Guatemalan and we had the absolute pleasure of meeting them and Bryan in March at the Tay Sachs conference. They traveled from Guatemala to the conference in Florida. We pray for God’s love and comfort to surround them as they go thru this very painful time.

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